Por favor, use este identificador para citar o enlazar este ítem: http://repositorio.pediatria.gob.mx:8180/handle/20.500.12103/2725
Título : Primary Immunodeficiency Diseases in Aguascalientes, Mexico: Results from an Educational Program
Creador: Álvarez Cardona, Aristóteles
Nivel de acceso: Open access
Palabras clave : Adolescente
Adulto
niño
preescolar
Relaciones Comunidad-Institución
Femenino
Conocimientos, Actitudes y Práctica en Salud
Humanos
Síndromes de Inmunodeficiencia - diagnóstico
Síndromes de Inmunodeficiencia - epidemiología
Síndromes de Inmunodeficiencia - inmunología
Lactante
Recién nacido
masculino
México - epidemiología
Mediana Edad
Selección de Paciente
Prevalencia
Remisión y Consulta - estadística & datos numéricos
Sistema de Registros
Adolescent Adult Child Child, Preschool Community-Institutional Relations Female Health Knowledge, Attitudes, Practice* Humans Immunologic Deficiency Syndromes/diagnosis* Immunologic Deficiency Syndromes/epidemiology* Immunologic Deficiency Syndromes/immunology Infant Infant, Newborn Male Mexico/epidemiology Middle Aged Patient Selection Prevalence Referral and Consultation/statistics & numerical data Registries
Enfermedades de inmunodeficiencia primaria; toma de conciencia; programa educativo
Primary immunodeficiency diseases; awareness; educational program
Descripción : Purpose: Primary immunodeficiencies (PIDs) are a heterogeneous group of disorders characterized mainly by recurrent infections. Late diagnosis remains as one of the main issues to solve. We aimed to increase PID diagnosis in Aguascalientes, a 1.3 million inhabitants state in the center of Mexico, and to describe the clinical features of such patients. Methods: We developed an educational program for health personnel and general public; patients with possible PID were referred to a State University clinical center from December 2011 to December 2012. The patients were evaluated at the clinic and their definitive diagnosis pursued through laboratory, molecular and genetic assays. We describe the findings of those patients and analyze the impact of the program in terms of number of referrals. Results: After 41 talks and 12 media appearances 151patients were referred for evaluation. Fifteen (9.9 %) were diagnosed with PID: five (33 %) had antibody deficiencies, seven (47 %) Well-defined syndromes, two (13 %) Severe combined Immunodeficiency (SCID) and one case (7 %) of an innate immune deficiency. All of the 15 PID patients had been referred by physicians, as opposed to the public. We estimated a “number needed to teach†of 75 physicians to get one PID patient referral. Conclusion: Educational programs are a fundamental part of the global efforts to increase PID diagnosis and care. To be successful, such programs should include public relations, reach for first-contact physicians, and aim to develop an efficient referral network with molecular diagnostic capability. Enhancing medical knowledge on PID is a successful strategy to improve early diagnosis and treatment. © 2016, Springer Science+Business Media New York.
Colaborador(es) u otros Autores: Espinosa-Padilla Sara Elva
Lugo Reyes Saul Oswaldo
Ventura-Juarez Javier
Lopez- Valdez Jaime Asael
Martínez-Medina Lucila
Santillan-Artolozaga Alberto
Cajero-Avelar Adriana
De Luna-Sosa Alma R.
Torres-Bernal Luis F.
Espinosa-Rosales Francisco J.
Fecha de publicación : 2016
Tipo de publicación: Artículo
Formato: pdf
Identificador del Recurso : 10.1007/s10875-016-0242-0
Fuente: Journal of Clinical Immunology 36(3):173 - 178
URI : http://repositorio.pediatria.gob.mx:8180/handle/20.500.12103/2725
Idioma: eng
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